Key Takeaways: Nevada’s Rare Disease Advisory Council (NV-RDAC) has launched comprehensive Patient & Family and Healthcare Provider Needs Assessments to gather critical insights about rare
Key Takeaways: Nevada passed two major rare disease bills in 2025: SB189 (genetic counseling licensure) and SB348 (newborn screening modernization). SB189 establishes licensing for genetic
Key Takeaways: Childhood cancer typically results from random genetic mutations that occur during rapid cell growth and development, not from lifestyle or environmental factors. Most
Key Takeaways: On September 30, 2025, the U.S. Department of Health and Human Services announced a decision that will reshape the future of pediatric cancer
Key Takeaways: Every day at Cure 4 The Kids Foundation, I meet parents whose children are facing both medical and emotional battles. One common story
Key Takeaways: A new Executive Order directs federal funding and resources specifically toward using AI technology to improve pediatric cancer diagnosis, treatment, and outcomes. The
by: Logan ReeverPosted: Mar 6, 2025 / 10:48 PM PSTUpdated: Mar 6, 2025 / 11:29 PM PST LAS VEGAS (KLAS) — Fighting is a full-time job, whether you’re
Cure 4 The Kids Foundation is the First Facility In Nevada To Administer Transformative Therapy
The Rare Disease Advisory Council is seeking input from the public to help improve the health of Nevada residents. The council is focused on addressing the needs of those with rare diseases and is looking for feedback from patients, caregivers, and healthcare providers. The goal is to gather information that can be used to develop strategies and policies to improve the lives of those affected by rare diseases in Nevada.