Genetics
Protocol:110-504
Condition or Disease: Mucopolysaccharidosis Type IVA
Study Type: Observational
Status: Open for enrollment
Study Title: Morquio A Registry Study (MARS)
Principal I investigator: Angela Berg, DNP, APRN, CPN
Genetics
Protocol:110-504
Condition or Disease: Mucopolysaccharidosis Type IVA
Study Type: Observational
Status: Open for enrollment
Study Title: Morquio A Registry Study (MARS)
Principal I investigator: Angela Berg, DNP, APRN, CPN
The Rare Disease Advisory Council is seeking input from the public to help improve the health of Nevada residents. The council is focused on addressing the needs of those with rare diseases and is looking for feedback from patients, caregivers, and healthcare providers. The goal is to gather information that can be used to develop strategies and policies to improve the lives of those affected by rare diseases in Nevada.
Cure 4 The Kids Foundation is pleased to announce the appointment of Christine Tonn as its new chief executive officer (CEO), effective January 1, 2024. This promotion is part of a board of directors-supported management succession plan.