Tag: Cure 4 The Kids Foundation

Fashion & Philanthropy’s Fantastic Night Out! Circus Couture “RE:imagined” Happening May 1 at The Theater at Virgin Hotels Las Vegas

Posted on by David Frye

 

April 17, 2025 By Red 7 Communications

LAS VEGAS – April 15, 2025 –  Southern Nevada’s premier fashion, performance, and philanthropic event, Circus Couture, returns to The Theater at Virgin Hotels Las Vegas on Thursday, May 1, 2025, in support of the courageous children receiving treatment at Southern Nevada’s only pediatric cancer and rare disease treatment center, Cure 4 The Kids Foundation (C4K).

Circus Couture RE:imagined – presented by United Healthcare – is an entertaining and immersive event that honors the triumphs and challenges faced by the brave warriors and families served by C4K. This year, the audience will be transported through the elements – fire, water, earth, and air – to artistically illustrate the transformation patients experience as part of their challenging health journeys.

“Without a doubt, this is one of the best nights to experience in Las Vegas,” said Annette Logan-Parker, Founder and Chief Innovation and Advocacy Officer at C4K. “To see the artists, technicians, and fashion designers put their heart and soul into creating this special night supporting our patients and our organization is an inspiration to all of us.”

From its beginning in 2010, Circus Couture has featured fantastical, inventive, and often avant-garde designs created by local fashion designers, many of whom work as wardrobe professionals for well-known Las Vegas production shows. Circus Couture RE:imagined gives the designers an opportunity they often don’t have in their work —the ability to craft their own designs and present them to the public.

For nearly 20 years, the proceeds from Circus Couture have tremendously impacted C4K’s ability to provide new and innovative services to the community. Each year, more than 7,000 unique patients receive treatment at the clinic for pediatric cancer, rare diseases, bleeding disorders, and rheumatological and genetic conditions. C4K’s Charity Care Plan ensures that those without medical insurance or the financial means to pay for services receive the same high-quality, research-driven treatment.

This year, Circus Couture RE:imagined will honor two outstanding individuals who have consistently supported C4K and whose efforts have helped expand community services. Farhan and Ellie Naqvi – Naqvi Injury Law – are being recognized as the 2025 Community Partner of the Year. Since 2019, Farhan Naqvi has been a C4K Board of Directors member. In addition to its long history of financial support for the organization, Naqvi Injury Law recently partnered with the Vegas Golden Knights, allowing hats designed by C4K patients to be sold at the VGK team store, with proceeds going to C4K.

Doors for Circus Couture RE:imagined open at 6 p.m. for the silent auction and a special wine tasting presented by Allegretto Vineyard Resort of Paso Robles, California. The dinner and show begin at 7 p.m. A limited number of general admission tickets are available for $35 at cure4thekids.org but do not include dinner.

UFC helps Las Vegas cancer facility by creating youth training room

Posted on by David Frye

by: Logan Reever
Posted: Mar 6, 2025 / 10:48 PM PST
Updated: Mar 6, 2025 / 11:29 PM PST

LAS VEGAS (KLAS) — Fighting is a full-time job, whether you’re in the UFC or battling cancer.

This makes one room in the Cure 4 The Kids Foundation facility a vital part of the fight to come.

“It reminds them of being a superhero, being in the gym,” Physical therapist Katie Bremer said. “We see them as a superhero because they’re fighting the real fight.”

This is the first youth training facility the UFC has helped put together and the only one in the country. Former fighter Forrest Griffin was a large part of making it happen.

“It does help us put our struggle in perspective you know,” Griffin said. “There are more important things than a fight. These kids, and I don’t want to sound overdramatic, but their lives are on the line here.”

Tomier Asfar is a former patient who battled HLH and leukemia. He fought through and was able to ring the bell.

As someone who knows the importance of inspiration during this difficult time, he saw how this means the world to the kids.

“The fact that they come in here and help us, I think it’s amazing, and I think it makes us forget about what our issues are,” Asfar said.

The fight is far from over, but neither is the fun.

Whether it is pushup contests with a UFC legend or simply playing catch with their physical therapists, this room and these memories signify the ability to push through.

“When they make it through this, they’re going to be so strong. I like to say they’re going to be bulletproof as they get older. For us and all the UFC fighters, we really take inspiration our of it,” Griffin said.

C4K Welcomes Dr. Mark Nunes, Nevada’s First Full-Time Family Geneticist

Posted on by Amber Willams

January 22, 2025

LAS VEGAS – January XX, 2025 – In a continuing effort to bring essential medical specialties to the people of Nevada, Cure 4 The Kids Foundation (C4K) is proud to welcome Mark Eugene Nunes, MD, the state’s first full-time family geneticist.

As C4K’s Director of Genetics, Genomics, and Metabolism, Dr. Nunes will see families , children and adults with genetic disorders who previously were forced to travel out of state to access these highly individualized medical diagnostic and treatment services.

There are around 20,000 genes or instructions in every person determining how their body is made and functions. A problem with just one of these genes is sufficient to cause one of around 7,000 rare genetic or heritable disorders. Utilizing his decades of expertise, Dr. Nunes will assist in the recognition, evaluation, diagnosis, management, and treatment of these inherited disorders. Working closely with Genetic Counselors, Dr. Nunes helps families understand the implications of genetic test results, and the chance an inherited disorder may recur in a family. Geneticists provide resources for and teach families, their healthcare providers, and specialists about the implications of a  rare disorder. As a Genomics specialist, Dr. Nunes can help guide how an individual’s genetic profile can influence their risk and management of rare and common health conditions and is already working with the Nevada Rare Disease Advisory Council to use genomics in public health.

“This is truly a game changer for our community,” said Annette Logan-Parker, Founder and Innovation and Advocacy Officer at Cure 4 The Kids Foundation. “The expanding field of genetics and genomics offers incredible insight for our medical staff and, ultimately, our pediatric and adult patients.  Until now, these services were only available to Nevadans on a limited basis. With Dr. Nunes now part of C4K, this is a win for our current and future patients as well as for the State of Nevada.”

Dr. Nunes is board-certified in both Pediatrics and Clinical and Molecular Genetics. Most recently, he served as Director of Medical Genetics and Metabolism at Valley Children’s Hospital in Madera, California. His role included the supervision of State-sponsored prenatal genetic clinics and the creation of specialized multidisciplinary clinics focused on cardiogenetic and neurogenetic cases. Dr. Nunes helped successfully lobby the California Department of Public Health to expand non-invasive prenatal testing (NIPT) for all pregnant women in California and helped pilot prenatal whole genome sequencing (WGS).

Before Valley Children’s Hospital, Dr. Nunes was Division Chief of Medical Genetics at Kaiser Permanente in San Diego and a partner physician at Southern California Permanente Medical Group. Dr. Nunes’ first genetics job out of training was as an active-duty Pediatrician and Clinical Geneticist in the Air Force, where he also directed the USAF Molecular Diagnostic Laboratory. He helped successfully petition the Surgeons General in cases of genetic discrimination in the military, which helped inform the Genetics Information Nondiscrimination Act (GINA) of 2008.

Dr. Nunes brings a wealth of knowledge with more than two decades of experience in appointed academic roles specializing in Pediatrics and Genetics at the University of California, San Diego (UCSD), Ohio State University, Uniformed Services University of Health Sciences in Maryland, and the University of Washington. 

As a thought leader in the field of Genetics and Genomics, Dr. Nunes has shared his research and experience in multiple peer-reviewed journals including Human Genetics, American Journal of Human Genetics and Human Molecular Genetics, and the National Library of Medicine sponsored website, GeneReviews.

Dr. Nunes earned his medical degree from the F. Edward Herbert School of Medicine at Uniformed Services University of the Health Sciences in Maryland and completed his internship and residency in Pediatrics at the David Grant US Air Force Medical Center. He completed fellowships in Clinical Genetics, Molecular (DNA Laboratory) Genetics, and Teratology at the University of Washington and Child Protection and Forensic Pediatrics at Inova Fairfax Hospital for Children in Virginia.

Dr. Nunes was born in England to a U.S. Air Force airman and base Librarian and raised in Hawaii and Northern California. Nunes and his wife have been married for 25 years and are raising four children.

Hemophilia Patient Receives FDA Approved Gene Therapy Treatment

Posted on by David Frye
Members of the Cure 4 The Kids Foundation medical team completed Nevada’s first successful gene therapy IV infusion for a hemophilia B patient.

July 31,2024 

Cure 4 The Kids Foundation (C4K) announced it has completed Nevada’s first successful infusion of Hemgenix®, a gene therapy option for adult patients with hemophilia B — a genetic bleeding disorder in which people do not produce a protein needed to create blood clots.

Depending on severity, a hemophilia B patient can require multiple infusions of factor IX on a weekly basis to prevent a bleed. However, after the one-time Hemgenix® infusion, the gene therapy is expected to enable the individual’s body to produce their own Factor IX, eliminating weekly infusions.

Under the medical supervision of Dr. Aimee Foord, director of C4K’s bleeding and clotting clinic along with Dr. Joseph Lasky, medical director of C4K and the entire C4K medical team, the infusion was completed in C4K’s infusion suite.

The patient, a 39-year-old male from Arizona, will be monitored on a regular basis to ensure the treatment’s success.

“This treatment is ground-breaking for a number of reasons,” said Annette Logan-Parker, chief innovation and advocacy officer at C4K. “Most importantly, Hemgenix® gives the patient a freedom from daily or weekly factor infusions they have not had since their original hemophilia diagnosis. From a larger perspective, being approved to provide this life-changing treatment is another example of how Cure 4 The Kids Foundation is bringing innovation and cutting-edge therapies to the patients of Nevada and the western United States.”

Hemgenix® (etranacogene dezaparvovec-drlb) is the first gene therapy for the treatment of adults with hemophilia B who currently use factor IX prophylaxis therapy, or have current or historical life-threatening bleeding, or have repeated, serious spontaneous bleeding episodes. Although Hemgenix® is not a cure for hemophilia B patients, the medical advancement may reduce, if not, eliminate weekly preventative factor replacement and bleeds.

Hemgenix® relies upon a gene transfer that is administered through intravenous (IV) infusion. The approach introduces a “working” or functional gene into liver cells to “instruct them” to produce factor IX protein, which is deficient in patients with hemophilia B, and which helps form blood clots to prevent prolonged, excessive or life-threatening bleeding.

Hemgenix® has the potential to fundamentally transform the treatment paradigm through a single, one-time infusion in people living with hemophilia B by addressing the genetic cause of the condition.

Because the genes that cause hemophilia A and B are located on the sex-determining X chromosome, the disorder disproportionately affects males. According to the U.S. Centers for Disease Control and Prevention (CDC), as many as 33,000 males in the United States are living with hemophilia. Hemophilia B is a rarer form of the disorder, found in just 3.7 cases per 100,000 males.

Cure 4 The Kids Foundation’s “Happy Xmas (Cancer’s Over)” Music Video Wins Pacific Southwest EMMY® Award

Posted on by David Frye

June 24, 2024 By Red 7 Communications

LAS VEGAS – June 24, 2024 – “Happy Xmas (Cancer’s Over),” a holiday-themed track and music video featuring Cure 4 The Kids Foundation patients, celebrities, and well-known recording artists, received the 2024 EMMY® for Outstanding Musical Composition & Arrangement by the National Academy of Television Arts and Sciences, Pacific Southwest Chapter.

The EMMY® was presented to Mitch Koulouris, the driving force behind Christmas 4 The Kids, a 22-track holiday album that included the song “Happy Xmas (Cancer’s Over).” One hundred (100) percent of the proceeds from sales and streaming of the 22 songs continue to benefit Cure 4 The Kids Foundation, Southern Nevada’s only pediatric cancer and rare disease treatment center.

“I’m honored and humbled to receive such a prestigious award for this project” said Koulouris. “More importantly, this EMMY® win helps shine a bright light on the important, life-saving work by Cure 4 The Kids Foundation for the children of Nevada.

Koulouris, director of social media for Cure 4 The Kids Foundation, has a long history working in the music industry. He founded what quickly became the world’s largest digital music distribution company, was a GRAMMY® voting member for over a decade, and served two terms on the GRAMMY® Board of Governors. His unique rendition of the John Lennon classic “Happy Xmas (Cancer’s Over)” features American Idol Casting Producer and season 11 contestant Kyle Khou and Backstreet Boys’ Nick Carter in a dynamic and impassioned vocal performance duet.

“I could not be happier to hear that our rendition of “Happy Xmas (Cancer’s Over)” featuring Kyle Khou, which was recorded for the 2023 Christmas 4 The Kids holiday album, has won the EMMY award for Outstanding Musical Composition/Arrangement for the NATAS Southwest Region. Wow!” said Nick Carter of Backstreet Boys. “I am so grateful to be a part of this project and to support an organization that is doing so much to help improve the lives of so many children and their families in Nevada. This award is for them!”

In addition to producing the digital album and single, Koulouris also produced and directed the “Happy Xmas (Cancer’s Over)” music video at the state-of-the-art Vū Studios, which featured Khou, Carter, Las Vegas celebrities and supporters, as well as patients and providers of Cure 4 The Kids Foundation. The “Happy Xmas” track was recorded at the Electric Shop Recording Studios in Las Vegas.

The EMMY® win is the first on behalf of Cure 4 The Kids Foundation.

About Cure 4 The Kids Foundation
Founded in Las Vegas in 2007, Cure 4 The Kids Foundation provides high-quality, research-focused medical treatment to children battling cancer and other life-threatening conditions. Cure 4 The Kids Foundation operates the only outpatient childhood cancer treatment center in Nevada and is proudly accredited by The Joint Commission. This stringent medical accreditation and the required unannounced inspections ensure patients are getting the best care possible. A 501(c)(3) nonprofit organization, Cure 4 The Kids Foundation increases access to specialized treatments that improve patient outcomes. Its Charity Care Program provides high-quality treatment on a sliding-scale basis. No patient is ever turned away for financial reasons. For more information, visit cure4thekids.org

Rare Disease Advisory Council seeks input for healthier Nevada

Posted on by David Frye

BY ANNETTE LOGAN-PARKER SPECIAL TO LAS VEGAS BUSINESS PRESS

March 5, 2024 – 9:37 am

Recall your last visit to the doctor’s office. It’s likely that you spent a significant (and possibly frustrating) amount of time waiting in the lobby or even in the exam room before your turn finally arrived.

While I wish I could provide a solution to reduce those waiting times, I must admit that I can’t. However, what I can offer you is an opportunity to make the most of your “wait time” while contributing to a cause that helps our state gain a deeper understanding of the challenges faced by those affected by rare diseases.

In the United States, more than 7,000 rare diseases impact over 30 million individuals. Some of these conditions are exceedingly rare, affecting a handful of families in an entire county. Others, however, touch the lives of hundreds or even thousands of people, including many who live right here in Nevada.

Surprisingly, you may know someone grappling with a rare disease without even realizing it. For instance, childhood cancer is classified as a rare disease. Likewise, many adult forms of cancer fall into this category. Conditions such as sickle cell anemia, hemophilia, various bleeding and clotting disorders, cystic fibrosis, Duchenne Muscular Dystrophy and approximately 50 lysosomal storage diseases, including Pompe disease, Fabry disease and Gaucher disease, all fall under the rare disease umbrella.

In broad terms, a rare disease is one that affects fewer than 200,000 individuals. To ensure Nevada can allocate the necessary resources, treatment options and related services, it’s crucial to have a clear perspective on the number of families impacted by these conditions within the state. And this is where you come in.

The Nevada Rare Disease Advisory Council (NVRDAC) has been tasked with the objective of conducting a comprehensive statistical analysis of the occurrence, causes and economic impact of rare diseases in the state. In order to accomplish this objective, they have put together a statewide needs assessment in the form of an anonymous survey aimed at providing invaluable insights into the prevalence of rare diseases. The “While You Wait” campaign offers you the chance to complete this survey while waiting for your doctor’s appointment. The Nevada Rare Disease Advisory Council (RDAC) is actively seeking survey participants to help identify the extent of rare diseases in Nevada.

In collaboration with medical providers, urgent care centers and various medical offices, we are making every effort to make this survey readily accessible. We’ve asked medical providers to post the flyers with an easily accessible QR code in exam rooms, front offices, waiting areas and anywhere patients will notice them. If you prefer not to wait for your next doctor’s visit, you can complete the survey online at redcap.link/nvrdac .

The “While You wait” needs assessment allows the RDAC to gather insights from individuals who are directly affected by rare diseases or have family members impacted by them.

The survey or “needs assessment” represents just the initial phase of the NVRDAC’s mission. The council’s objectives extend to ensuring that medical providers across the state, both in urban and rural areas, possess the knowledge and awareness required to identify rare diseases, recognize their symptoms and provide appropriate care.

Additionally, the council will explore the consequences of delayed or inadequate treatment on patients’ quality of life and its impact on Nevada’s economy. Finally, the council will examine treatment delivery systems for rare diseases and formulate recommendations aimed at extending the lifespan and improving the quality of life for these patients.

Annette Logan-Parker serves as the chair of the Nevada Rare Disease Advisory Council. Logan-Parker is a former nurse and the founder and former CEO of the Cure 4 The Kids Foundation (C4K), Southern Nevada’s sole pediatric cancer and rare disease treatment center. She now holds the position of C4K’s chief innovation and advocacy officer.

Cure 4 The Kids Foundation Announces Senior Leadership Changes

Posted on by Mitchell Koulouris

Cure 4 The Kids Foundation Announces Senior Leadership Changes

LAS VEGAS – January 8, 2024 – Cure 4 The Kids Foundation (C4K), Southern Nevada’s only pediatric cancer and rare disease treatment center, is pleased to announce the appointment of Christine Tonn as its new chief executive officer (CEO), effective January 1, 2024. This promotion is part of a board of directors-supported management succession plan.

Tonn has been an integral part of Cure 4 The Kids Foundation for more than 15 years, initially serving as the chief financial officer and later being promoted to president in 2021. Her extensive experience in managing the financial impact of healthcare industry changes, including patient services, medical treatments, and reimbursements, has been invaluable to the organization. Tonn’s expertise in medical billing and collection, coupled with her background as a nonprofit auditor, has enabled C4K to navigate these challenges while minimizing the impact on patient services. She also played a key role in the development of C4K’s Charity Care Plan, ensuring that uninsured families can receive the necessary treatment.

“I am incredibly honored to serve as CEO of Cure 4 The Kids Foundation and to lead our team in continuing to support families affected by pediatric cancer and rare diseases in Southern Nevada and beyond,” said Tonn. “Working alongside C4K’s founder, Annette Logan-Parker, for 15 years has been a privilege, and I am grateful for her unwavering support.”

In light of Tonn’s promotion, Annette Logan-Parker, the founder and former CEO of Cure 4 The Kids Foundation, will assume the role of chief advocacy & innovation officer. In this capacity, Logan-Parker will advocate for the medical needs and services of pediatric cancer and rare disease patients with lawmakers at the local, state, and national levels. She will also focus on developing external strategies to enhance C4K’s ability to serve an increasing number of patients and expand research opportunities, including donor engagement and physician recruitment. Logan-Parker will also remain president of the Cure 4 The Kids Foundation Board of Directors.

“I am eager to bring together decision-makers and industry professionals to explore solutions that have contributed to C4K’s success in meeting patient needs,” said Logan-Parker. “While there is a consensus that the U.S. healthcare system is broken, I firmly believe that C4K is in a unique position to demonstrate alternative methods and systems that policymakers can see improve outcomes.”

Cure 4 The Kids Foundation is confident that under Christine Tonn’s leadership as CEO and Annette Logan-Parker’s continued dedication as chief advocacy & innovation officer, the organization will further its mission of providing exceptional care and support to pediatric cancer and rare disease patients.

###

About Cure 4 The Kids Foundation

Founded in Las Vegas in 2007, Cure 4 The Kids Foundation provides high-quality, research-focused medical treatment to children battling cancer and other life-threatening conditions. Cure 4 The Kids Foundation operates the only outpatient childhood cancer treatment center in Nevada and is proudly accredited by The Joint Commission. This stringent medical accreditation and the required unannounced inspections ensure patients are getting the safest care possible. A 501(c)(3) nonprofit organization, Cure 4 The Kids Foundation increases access to specialized treatments that improve patient outcomes. Its Charity Care Program provides high-quality treatment on a sliding-scale basis. No patient is ever turned away for financial reasons. For more information, visit  www.cure4thekids.org.

For additional information, please contact:

Mitch Truswell
Red 7 Communications
mitch@red7communications.com
702-531-4461

Welcome, Mary Lehoux! Cure 4 The Kids Foundation’s Registered Play Therapist

Posted on by admin

Many of you have probably seen Mary around the clinic. We wanted to officially welcome her to Cure 4 The Kids Foundation and find out a little more about the services she provides to patients. Mary’s title is behavioral health counselor, however, her license, credentials, and training allow her to provide specific practices and tools that we know will be immensely helpful to many of our patients.

Mary is a licensed clinical professional counselor (LCPC) and a registered play therapist (RPT). She graduated with a Master of Arts degree (M.A.) in Clinical Psychology, so her credentials appear after her name like this: Mary Lehoux, M.A., LCPC, RPT.

Play therapy may not be as well known as other forms of therapy, so we wanted to gain a greater understanding of the practice and how it can benefit patients.

Cure 4 The Kids Foundation: Play therapy may be somewhat new to patients and parents. Can you help us understand the purpose of play therapy and how it helps a patient?

Mary Lehoux: Of course! In simple terms, child play therapy is a way of being with the child that honors their unique developmental level. In my play sessions, I therapeutically use play to assist in addressing the goals of each patient (most often children ages three to 12 years) and their family, to help them improve their ability to express themselves and resolve their problems.

For those seeking a more clinical explanation: the Association for Play Therapy defines play therapy as “the systematic use of a theoretical model to establish an interpersonal process wherein trained play therapists use the therapeutic powers of play to help clients prevent or resolve psychosocial difficulties and achieve optimal growth the development.”

Cure 4 The Kids Foundation: How is play therapy different from regular play?

Mary Lehoux: Play therapy differs from regular play in that the therapist helps children to address and resolve their problems. Through play therapy, children learn to communicate with others, express feelings, modify behavior, develop problem-solving skills, and learn a variety of ways of relating to others.

Cure 4 The Kids Foundation: In your opinion, why can play therapy be more advantageous than talk therapy?

Mary Lehoux: Play therapy is an evidence-based approach that is ideal for most young children because it is a way of delivering therapy in the “language” of the child (play). So, in the same way that talk therapy is a helpful way for some patients to communicate and process experiences, play therapy is another way to communicate and process these experiences at the level of the child. Play therapy also benefits patients by providing a safe psychological distance from their problems and allows expression of thoughts and feelings appropriate to their development.

Cure 4 The Kids Foundation: How do you see your skills being helpful to patients?

Mary Lehoux: I engaged in extensive training and supervision to acquire the Registered Play Therapist credential. My background and training in play therapy includes both non-directive and directive approaches, which enables me to offer our patients and families a therapeutic setting that provides a sense of control, fosters freedom of expression, and teaches skills that promote emotional well-being and healing.

Cure 4 The Kids Foundation: Are you able to assist families of patients as well?

Mary Lehoux: Amanda Hope Rainbow Angels is the organization that has made this service possible, and allows me to provide therapy for any of our patients AND their family members. Amanda Hope’s mission made accessibility to therapy a priority for all children and families involved in our clinic.

Cure 4 The Kids Foundation: If a parent is interested in learning more about play therapy and whether it may benefit their child, what is the best way to reach out?

Mary Lehoux: Parents can reach out to their providers, or anyone in the clinic, and ask for Mary Lehoux. I can provide parents with informational brochures that detail more information about play therapy. Parents can also look online at www.a4pt.org for more information. I am in the clinic during regular business hours. I can often visit with patients and their families during their clinic visit, and help determine if play therapy would be beneficial for them.

Cure 4 The Kids Foundation: Thank you!

As Mary mentioned, Amanda Hope Rainbow Angels underwrite the cost of this incredible resource for patients of Cure 4 The Kids Foundation and their families. We wanted to find out a bit more about the organization and why they feel Mary’s services are so important. We spoke with Lorraine Tallman, who is the CEO and Founder of Amanda Hope Rainbow Angels, based in Phoenix, Arizona, and Kelley Nemiro, Chair of the Amanda Hope Rainbow Angels Nevada Advisory Committee.

Kelley: We wanted to provide Cure 4 The Kids Foundation access to a play therapist because we believe that healing goes so much further beyond the physical. With childhood cancer, the entire family takes a huge hit mentally and emotionally, and we wanted to make sure that all members were cared for, seen, and heard throughout the treatment journey.

Lorraine: I’ve met many Nevada warriors in Phoenix who were getting transplants and treatment. I have friends in Nevada as well, and I discovered our programs could bless several thousand children. Amanda, whose childhood cancer journey prompted the creation of our organization, dreamed of “Dignity and Respect” for patients like her, and advocating that “all questions are good” as a result of her experience. She felt it was important that patients have the coping skills to fight fear and to know that you have an entire community by your side your entire journey.

Cure 4 The Kids Foundation: We’ll encourage everyone to find out more about Amanda Hope Rainbow Angels by going to your website, but help us understand a little more about Amanda.

Lorraine: Amanda knew that connections with other warrior families was critical, and making the most of everyday was important – including planning a memory for each day. It could be planning a play date, a weekend away, working on crafts, a shopping day to use a gift card that was given to her, or spending time with friends that would come to see her or she would visit another child. Amanda was all about recognizing the small victories every day. Wake up every day- get dressed- believe and hope- smile- find laughter. Pray and listen to happy music. Every little thing helps.  Amanda would say, “Big hugs,” and her sweet hug could bring me through anything.

Kelley: My experience in working with Amanda Hope Rainbow Angels and learning about Amanda is that in any time of difficulty, slowing down and taking joy and gratitude in the little things can always bring light to a dark situation. Having faith and hope is so important.

Cure 4 The Kids Foundation: I was surprised to learn that despite all the challenges going on with her cancer journey, Amanda was also thinking about how to provide patients a greater sense of dignity when undergoing chemotherapy.

Lorraine: Amanda hated her body being exposed to everyone in a chemo clinic, so she had a dream to have a tee-shirt with peek-a-boo pockets for all of the tubes that came out of her body. By having to lift or take off her shirt for all to see, there was a loss of dignity, and in many ways, Amanda felt that her voice was taken away. Her experience led to this: Comfycozy for Chemo. It empowers our children to have a choice in their care, and in some cases has allowed for fewer drugs needed to calm patients down when their port is accessed. Voice and choice is a fantastic gift to a child who is fighting for their life.

Kelley: Through the shirt, we feel we are creating a situation that upholds dignity and respect for the children. The zippers at the collar provide easy port access, so the child does not have to undress to get labs drawn or have a treatment done. They also come in a bunch of fashionable styles for children of all ages.

Cure 4 The Kids Foundation: Thank you for all you do to support Cure 4 The Kids Foundation!

Learn more about Amanda Hope Rainbow Angels

Patients can apply for a Comfycozy for Chemo shirt

Cuts-4-The-Kids Happening Sunday, September 15, 2019!

Posted on by admin

The public – and first responders – are invited to get a haircut on Sunday, September 15, 2019, at Mosaic Salon at Boca Park. This simple act will raise funds for Cure 4 The Kids Foundation’s Charity Care Program which ensures patients without medical insurance or who are unable to pay for services still receive treatment.

For the 10th year, Mosaic Salon is hosting Cuts-4-The-Kids with all stylists donating their time so that all proceeds from haircuts and other salon services go to Cure 4 The Kids Foundation.

“We do not turn patients away from treatment for financial reasons,” said Annette Logan-Parker, president & CEO, Cure 4 The Kids Foundation.  “One of the ways we keep that promise is by having fundraisers – such as Cuts-4-The-Kids – that help us fund our Charity Care Program which has helped hundreds of families in our community.” 

Appointments are being accepted for Sunday, September 15, 2019, between 10 a.m. and 2 p.m.   Appointments can be made by calling 702-373-2108 or by going online to  and booking your own appointment.

This year, Cuts-4-The-Kids is encouraging first responders to join in the effort and get their haircut. All law enforcement, firefighters, ambulance companies and others are strongly encouraged to make an appointment. 

Services being offered at Cuts-4-The-Kids include:

• Women’s haircut $45 (includes blow-dry)
• Men’s haircut $25
• Children’s haircut $20
• Eyebrow Waxing $15
• Manicure $25
• Pedicure $45
• 15-minute chair massage $15


Mosaic Salon at Boca Park is located next to Total Wine in Boca Park, at 730 S. Rampart Boulevard, #110, Las Vegas, NV 89145.

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