The Children’s Specialty Center of Nevada has treated those affected by sickle cell disease since the clinic opened in 2007.

 

As a result of our efforts, in 2014 we were invited to join other well-known regional treatment centers to become part of the Pacific Sickle Cell Regional Collaborative (PSCRC). It is part of the U.S. Department of Health and Human Services’ Health Resources and Services Administration (HRSA).

The collaborative is aimed at increasing available services for those with sickle cell disease and improving long term health for this population. Many patients with sickle cell disease rely on Medicaid. Unfortunately, fewer providers are willing to see these complex patients due to low Medicaid reimbursement rates.

 

PSCRC outlets, including The Children’s Specialty Center of Nevada, provide the following services:

  • Sickle Cell Comprehensive Care Team - knowledgeable health care providers who are up-to-date on the latest and best treatment methods, best outcome practices and clinical trials. Team member will provide consistent medical access to sickle cell patients, which will improve overall health and life.
  • Shared measurement and data monitoring - this allows the best treatment methods to be tracked and ultimately shared to all providers in and outside the collaborative.
  • Family to Family community based organizations - this will help access those patients and families in need of services, in addition to medical treatment.

 

The Children’s Specialty Center of Nevada will join other sickle cell disease treatment centers including:

Recipient: Center for Inherited Blood Disorders, Orange, CA

Sub-Recipient, Co-PI: UCSF Benioff Children's Hospital Oakland, Oakland, CA

Core SCD Treatment Centers:

  • Providence Hospital, Anchorage, AK
  • University of Arizona Cancer Center, Tucson, AZ
  • St. Luke's Mountain States Tumor Institute, Boise, ID
  • Children's Specialty Center of Nevada, Las Vegas, NV
  • Oregon Health Sciences University, Portland, OR
  • Seattle Children's Hospital, Seattle, WA


Community Based Organization (CBO) Partners:

  • Sickle Cell Disease Foundation of California
  • Sickle Cell Community Advisory Council of Northern California


Other Partners:

  • California Rare Disease Surveillance Team, California Department of Public Health
  • University of California Davis Clinical and Translational Science Center
  • Kapi’olani Medical Center for Women and Children
  • Guam Department of Public Health & Social Services
  • Long Beach Memorial, Memorial Care Health System

 

To make an appointment, or for additional information, please call (702) 732-1493.